FASD Awareness Month & International FASD Awareness Day 2025: A Landmark Month for Change

September 2025 was a transformative month for FASD Ireland, filled with powerful moments of advocacy, education, and connection. As we marked FASD Awareness Month and International FASD Awareness Day on 9th September, we amplified voices, launched critical research, and brought communities together across the island of Ireland.


Launch of Groundbreaking National Research

On FASD Awareness Day, we proudly co-hosted the launch of a landmark research report by the Royal College of Surgeons in Ireland (RCSI) — the first of its kind to provide an evidence-based picture of FASD in Ireland. The findings were stark: FASD is the most prevalent yet least diagnosed neurodevelopmental condition in the country. The report called for urgent action, including:


  • FASD-specific training across sectors
  • Clear diagnostic and support frameworks
  • Dedicated services for assessment and lifelong support


Senator Anne Rabbitte, who received the FASD Champion 2025 Award, delivered a passionate call for systemic change and reaffirmed her commitment to national awareness and support.


FASD in Adulthood: Public Awareness Event in Ennis

Our public awareness event at the Buttermarket in Ennis focused on FASD in Adulthood, engaging employers, HR professionals, and educators. The event highlighted how simple accommodations can create inclusive environments for adults living with FASD.


#LightItRed & Red Shoes Rock

As part of the global #LightItRed campaign, Leinster House was illuminated in red for the second year running — a powerful symbol of solidarity. Supporters across Ireland joined the Red Shoes Rock movement, wearing red shoes and sharing photos to spark conversations and raise awareness.


Introduction to FASD Training – Online & In-Person

Throughout the month, we delivered multiple sessions of our CPD-accredited “Introduction to FASD” training, both online and in-person. These 3-hour workshops, led by CEO Tristan Casson-Rennie, provided foundational knowledge on FASD, its impact, and practical strategies for support. The sessions were attended by parents, carers, educators, clinicians, and social workers across Ireland and Northern Ireland.


Collaborative working: Lisburn Conference

We also participated in a cross-border conference in Lisburn, strengthening partnerships with professionals and families in Northern Ireland. This event, held by Oshays Brain Domain, underscored the importance of all-island collaboration in addressing FASD and ensuring consistent support across jurisdictions.


Looking Ahead

FASD Awareness Month 2025 was a turning point — but it’s only the beginning. At FASD Ireland, we remain committed to:


  • Raising awareness through education and advocacy
  • Supporting families and individuals living with FASD
  • Challenging stigma with compassion and facts
  • Pushing for policy change and dedicated services


Thank you to everyone who stood with us this September. Whether you attended an event, shared a post, wore red, or simply listened — you made a difference.

Together, we are #FASDStrongerTogether.

17 September 2025
On 9th September, International FASD Awareness Day, FASD Ireland proudly co-hosted the launch of a landmark research report conducted by the Royal College of Surgeons
20 August 2025
A young adult from Ennis living with FASD claims increased awareness of the disorder has allowed him to greatly develop throughout his life.
Image of a pregnant lady
24 July 2025
FASD Ireland notes with concern the Cabinet’s decision yesterday to defer the implementation of health information labelling on alcohol products until 2028.
10 June 2025
The conference titled ‘FASD in Ireland’ was organised by the Ennis based FASD Ireland – the national organisation supporting people living with Foetal Alcohol Spectrum Disorder, their families/caregivers and supportive professionals.
9 June 2025
BBC Race Across the World star Sam Gardiner has died following a car accident. He was 24 and lived with FASD.
15 April 2025
FASD Ireland fully understands the public anger that has been expressed toward the recent statements made by Minister of State for Mental Health and Older People, Mary Butler T.D. and publication of a book on issues pertaining to the prevalence of ADHD and Autism (ASD) by an individual.
31 March 2025
The Government has been urged to recognise FASD as a disability, ahead of a warning an epidemic is “coming down the road at us fast and furiously.
31 March 2025
In this Blog post - our Policy & Research Coordinator, Rob O'Connell shares his experience of attending the event.
11 March 2025
Clare County Council has heard calls for training on recognising FASD to be included in the curriculum for third level education.
Cork East TD Liam Quaide
27 February 2025
CORK EAST TD RAISES NEED FOR DIAGNOSIS AND SUPPORT  FOR PEOPLE LIVING WITH FASD IN DÁIL