FASD Awareness Month & International FASD Awareness Day 2025: A Landmark Month for Change

September 2025 was a transformative month for FASD Ireland, filled with powerful moments of advocacy, education, and connection. As we marked FASD Awareness Month and International FASD Awareness Day on 9th September, we amplified voices, launched critical research, and brought communities together across the island of Ireland.


Launch of Groundbreaking National Research

On FASD Awareness Day, we proudly co-hosted the launch of a landmark research report by the Royal College of Surgeons in Ireland (RCSI) — the first of its kind to provide an evidence-based picture of FASD in Ireland. The findings were stark: FASD is the most prevalent yet least diagnosed neurodevelopmental condition in the country. The report called for urgent action, including:


  • FASD-specific training across sectors
  • Clear diagnostic and support frameworks
  • Dedicated services for assessment and lifelong support


Senator Anne Rabbitte, who received the FASD Champion 2025 Award, delivered a passionate call for systemic change and reaffirmed her commitment to national awareness and support.


FASD in Adulthood: Public Awareness Event in Ennis

Our public awareness event at the Buttermarket in Ennis focused on FASD in Adulthood, engaging employers, HR professionals, and educators. The event highlighted how simple accommodations can create inclusive environments for adults living with FASD.


#LightItRed & Red Shoes Rock

As part of the global #LightItRed campaign, Leinster House was illuminated in red for the second year running — a powerful symbol of solidarity. Supporters across Ireland joined the Red Shoes Rock movement, wearing red shoes and sharing photos to spark conversations and raise awareness.


Introduction to FASD Training – Online & In-Person

Throughout the month, we delivered multiple sessions of our CPD-accredited “Introduction to FASD” training, both online and in-person. These 3-hour workshops, led by CEO Tristan Casson-Rennie, provided foundational knowledge on FASD, its impact, and practical strategies for support. The sessions were attended by parents, carers, educators, clinicians, and social workers across Ireland and Northern Ireland.


Collaborative working: Lisburn Conference

We also participated in a cross-border conference in Lisburn, strengthening partnerships with professionals and families in Northern Ireland. This event, held by Oshays Brain Domain, underscored the importance of all-island collaboration in addressing FASD and ensuring consistent support across jurisdictions.


Looking Ahead

FASD Awareness Month 2025 was a turning point — but it’s only the beginning. At FASD Ireland, we remain committed to:


  • Raising awareness through education and advocacy
  • Supporting families and individuals living with FASD
  • Challenging stigma with compassion and facts
  • Pushing for policy change and dedicated services


Thank you to everyone who stood with us this September. Whether you attended an event, shared a post, wore red, or simply listened — you made a difference.

Together, we are #FASDStrongerTogether.

27 March 2026
NEAR FM's Ger Ledden popped into our offices a few weeks ago to speak to our CEO Tristan about all things FASD.
25 March 2026
Tristan spoke to Marian in the weekly Health Section on Connemara Community Radio.
24 March 2026
Kate FitzHerbert, Chair of FASD Ireland Advisory Board was delighted to join Brian Redmond in the Studio at KCLR FM to talk about Foetal Alcohol Spectrum Disorder on the KCLR Daily.
by RG384860 24 March 2026
Newtalk 'Let Me Explain' podcast - Episode 223. Dadhood: The hidden risks of being drunk at conception - with Tristan Casson-Rennie
23 March 2026
On Thursday 19th March, our CEO, Tristan, was invited onto Castlebar Community Radio on The Chatroom with Angela Faull.
Woman sitting at a desk, wearing a telephone headset and looking at a computer screen
13 March 2026
More Than Half of Families Contacting FASD Hub Ireland This Year Concerned About Young Children Showing Signs of Foetal Alcohol Spectrum Disorder
15 December 2025
In memory of Alli MacNamara
7 October 2025
Tristan Casson-Rennie, CEO of FASD Ireland, has today expressed deep disappointment at the Irish Government’s 2026 Budget, describing it as “Failing People living with Foetal Alcohol Spectrum Disorder (FASD) and Ignoring Alcohol Related Harm”.
17 September 2025
On 9th September, International FASD Awareness Day, FASD Ireland proudly co-hosted the launch of a landmark research report conducted by the Royal College of Surgeons
20 August 2025
A young adult from Ennis living with FASD claims increased awareness of the disorder has allowed him to greatly develop throughout his life.